Wednesday, December 22, 2010


Wow, just great being home for the holidays. Temperatures ranging from -8C to 1C, snowbanks piled up to five feet high everywhere. Glistening white snow, and all the houses of my friends and families that aren't tweaked in the least for a boy with CP. Wow. I didn't realize just how much Roxy and I have planned everything around Blue and his "situation."
So, to make it a little easier for us, we used a kaboodle of our 'Avion' points to pay for part of the hotel; and here we are on night 3 of 11 in a small, fully furnished hotel. I must say, the things we're learned over the years about food prep, facilitated movement, and communication; it all comes into play now almost somewhat desperately.
It was most interesting to see my nieces stand respectfully around, watching Blue sitting on my lap as if he were some fragile creature. Nobody really loosened up until I began rolling about in the living room a little with Blue. What can a guy do? Last time we visited without Blue,making the impression that we can run, jump, and play about like a typical Aunt or Uncle. This time, we're with Blue; and everyone has to kind of start over again re-learning who he is and how we is with him. Very interesting. I probably shouldn't even be blogging here, because how that process is working out is something I can't really explain yet.
All I know is that it filled me with peace and happiness driving my Dad's mini-van back to the hotel and looking across so many snow-covered yards to see Christmas trees lit up and sparkling in the front windows of so many cozy homes. Just having all three of us there to enjoy it was/is wonderful. Ahhh. Home.

1 comment:

Susie Mallett said...

Happy Christmas James and family.

I am enjoying a less extreme version of the Christmas atmosphere here in Nürnberg. More snow is forecast tonight just as the last heaps have made room for the next. The twinkly lights just got switched on on my own tree.

Best wishes to you all